Part of Lung Cancer Screening Data Set user guidance
Breakdown of data items by table
Data items are only included in this section where there is additional information provided that is not in the ETOS. If no additional information is available, the data item will not be included below.
This document is continually under review. Where data items do not have additional guidance, we will amend if suitable guidance becomes available.
Header
LCS000 Header
The Header table should include metadata relating to the submission, including which organisation and reporting periods the data relates to, the primary system in use and the date or time the submission was created. The reporting period is the period of time in which the activity took place.
| Data item name | Additional notes |
|---|---|
| ORGANISATION IDENTIFIER (CODE OF PROVIDER) |
This is the Organisation Identifier of the organisation acting as a Health Care Provider for the data contained within the submission file. This will be concatenated with any Local Patient Identifiers to form a unique "Local Patient Identifier" within the national database. For Lung Cancer Screening Data Set (LCSDS) this is the individual site delivering the service in a specific locality. We will use this data item for national reporting and comparison purposes. Each site will need an Organisation Data Service (ODS) code. If your site does not already have an ODS code this will need to be requested in advance of data submission. Further guidance on this process will be shared shortly on the LCS pages. If you are unsure how to define your service or providers locally, please discuss this with the NHSE LCSP National Team. |
| ORGANISATION IDENTIFIER (CODE OF SUBMITTING ORGANISATION) |
This is the Organisation Identifier of the organisation acting as the physical sender of a data set submission. This field will normally contain the same Identifier as Organisation Identifier (Code of Provider), which is used to determine the Organisation Identifier of the Organisation acting as a Health Care Provider. This Identifier provides an audit trail where a different organisation is undertaking the submission on behalf of the provider organisation. It will not be carried over into the national database. It may be appropriate for the codes to differ where a submission is carried out on behalf of another provider. For example, for the LCSDS, submissions could be made by either the local site or the provider on their behalf. In this instance, provider and submitter should ensure that appropriate governance is in place for the flow of patient identifiable data between the two organisations. Further information can be found on the information governance pages of the NHS England website |
| PRIMARY DATA COLLECTION SYSTEM IN USE |
This is a free text field. Where multiple systems are in use, please indicate the primary system in use, from which the highest number of records is extracted. |
Patient administrative information
LCS001 Patient demographics
This table contains information on patient identifiers, demographic information and organisational data. The collection of these data items can be used to analyse outcomes across different ethnic groups, age groups and geographic location.
- This table should include a record for each participant receiving care within Lung Cancer Screening services.
- Please ensure that this table contains a record for all participants for whom activity is recorded within any of the other tables.
- Providers should supply LCS001 data as it was at the end of the reporting period.
- Providers must populate all known data items within this group even if they are unchanged since the last submission. Do not just provide data for all "changed" data items.
- Much of the data within this table will be obtained from the participant or their informal carer(s) on first registration and then checked with the participant at appropriate intervals.
We have included some guidance on gender which has been produced by NHS England. There is also additional guidance available.
| Data item name | Additional notes |
|---|---|
| LOCAL PATIENT IDENTIFIER (EXTENDED) |
The Local Patient Identifier (Extended) is used to uniquely identify a patient within the Health Care Provider. It may be different from the patient's case note number and may be assigned automatically by the computer system. This is a primary key in the LCS001 Patient Demographics table and provides a link to a number of other tables (see data model). No participant can have more than one Local Patient Identifier (Extended). This can be checked by looking at data items such as NHS number, postcode and date of birth. The Local Patient Identifier (Extended) provides a link between records in the LCS001 Patient Demographics table, and associated tables. Please refer to the LCSDS Data Model for details. To avoid the incorrect linkage of records the Local Patient Identifier (Extended) must not be reused so it should only ever relate to one patient. This ensures that data relating to more than one patient does not get incorrectly identified as belonging to a single patient in LCSDS. |
| ORGANISATION IDENTIFIER (LOCAL PATIENT IDENTIFIER) |
This identifies the Local Patient Identifier issuing organisation, for example: where organisations have gone through a merger or split.
|
| NHS NUMBER | NHS number is the primary source of identification for participants in England And Wales and must be submitted. For LCDS, all eligible participants will be registered at a GP practice and as such should already have a confirmed NHS number. It will not be possible to submit a patient's data to LCDS without an NHS number. |
| NHS NUMBER STATUS INDICATOR CODE |
This data item is ‘Mandatory’ and it must always be completed. In most cases, this data item will be flowed with value [01] - Number present and verified. The [01] will indicate that the data provider has validated the number against the central Patient Demographics Service (PDS) and therefore facilitates reliable data linkage. Data providers may flow data for participants with an NHS number status indicator code other than [01] and they will be accepted, however, reports that need reliable linkage may exclude these records unless reliable linkage is available via Local Patient Identifier. |
| PERSON BIRTH DATE |
This data item is ‘Mandatory’ and it must always be completed. |
| POSTCODE OF USUAL ADDRESS |
This data item is ‘Mandatory’ and it must always be completed. Please see the ‘Technical Glossary’ tab within the ETOS for further details regarding acceptable postcode formats and validations applied at the data submission portal. Where the person has no fixed abode, this should be recorded as ZZ99 3VZ. If the postcode is unknown, ZZ99 3WZ should be used. For overseas residents, please use the pseudo country postcode found in the ‘Country names and pseudo country postcodes in pseudo country postcode order’ file on the NHS England web page: Data supplied by the Office of National Statistics. The postcode will be recorded in the format ZZ99 xxZ, where xx denotes the country pseudo postcode. |
| PERSON STATED GENDER CODE |
This is the existing code used in PDS (Personal Demographics Service) which records somebody’s stated gender. (This does not have to be their birth gender or their legal gender). This will record the person’s gender at their GP (for example. male or female) and will also match the PDS data which is provided by the GP. National Code X 'Not Known (Person Stated Gender Code not recorded) ' means that the sex of a Person has not been recorded. National Code 9 'Indeterminate' means indeterminate, unable to be classified as either male or female. |
| ETHNIC CATEGORY |
The information recorded about the patient’s ethnic category must be obtained by asking the participant. Although ethnic category is recorded by a participants GP practice, the question can also be asked during the risk assessment. The answer given at that point should be considered as correct at the time the risk assessment was made. Capture and submission of Ethnic Category within the LCSDS is required for ALL participants, and not only those subject to an inpatient stay. This is to support ethnic monitoring as required of public bodies under the Race Relations Amendment Act 2000. Codes [Z] – Not Stated, and [99] - Not Known should be applied as follows: The [Z] 'Not Stated' national code should only be used where the patient had been asked and had declined either because of refusal or genuine inability to choose. The [99] 'Not known' national default code should be used where the participant had not been asked or the participant was not in a condition to be asked. For example unconscious. |
| ETHNIC CATEGORY 2021 |
Placeholder data item to accommodate the 2021 census when it goes live. This pilot field should not be populated or submitted and this data item will become live once the census 2021 data and the Unified Information Standard for Protected Characteristics have been published. |
| LANGUAGE CODE (PREFERRED) |
In order to populate this data item please select either: The two character code found in the ISO 639-1 Code column from the ISO 639.2 Codes for the Representation of Names of Languages (CRNL); code list; or one of the five communication method extensions detailed in NHS Data Model & Dictionary. Please note: the format for this data item is an2. Only the ISO 639-1 Code column should be referenced. Please do not attempt to submit codes that appear in the ISO 639-2 Code column by truncating to two characters. In some cases, a valid code would be derived, however the valid code may link to a language that is unconnected to the intended language for submission. On submission validations would not be able to detect this therefore any reporting would include incorrect calculations related to preferred language. |
| PRISONER INDICATOR |
A ‘Y/N’ data item to indicate whether this participant is currently in a prison. This should be the status on the last day of each monthly reporting period. Where this information is unknown, it is acceptable to leave this data item blank. |
| PERSON DEATH DATE | This should be submitted for any known death, not only where a death certificate is issued. |
LCS002 GP practice registration
LCS002 is a mandatory group that must be included whenever any other groups are transmitted that refer to this participant.
The group includes start and end dates for when the participant was registered with the practice.
| Data item name | Additional notes |
|---|---|
| LOCAL PATIENT IDENTIFIER (EXTENDED) |
The Local Patient Identifier (Extended) is used to uniquely identify a participant within the Health Care Provider. It may be different from the participant’s casenote number and may be assigned automatically by the computer system. Within the LCS002 table this is a foreign key linkage data item. There must be an identical ‘Local Patient Identifier (Extended)’ present in the LCS001 group for this record to be accepted. |
| GENERAL MEDICAL PRACTICE (PATIENT REGISTRATION) |
The following default ODS codes apply:
See General Medical Practice Code (Patient Registration) for information on the use of the codes above. We do not currently recommend recording branch surgery codes within this field. Please continue to submit the parent GP codes as these will continue to be assigned to the correct ICB. Further information can be found on the NHS Data Model and Dictionary. For more general information on default codes, please visit Organisation Data Service Default Codes. |
| START DATE (GMP PATIENT REGISTRATION) |
This field is primarily to track changes to the GP and their commissioner during the referral. This field should only be populated if the actual start date is known. If this is not known, then it is acceptable to leave this field blank. If the patient changes General Medical Practice whilst under the care of the service provider, then a new GP Practice Registration record should be submitted, and the start date of the patient’s new General Medical Practice registration populated. The start date for the new GP can be the same date as the end date for the previous GP. |
| END DATE (GMP PATIENT REGISTRATION) |
This field is primarily to track changes to the GP and their commissioner during the referral. If this field is left blank the General Medical Practice Code recorded in this table will be assumed to be current. If the patient changes General Medical Practice whilst under the care of the service provider, then it is expected that the end date of the previous General Medical Practice should be populated in the GP Practice Registration record, and new record submitted containing details of the new GMP Registration |
Clinical terminology
LCS003 Finding
To carry details of findings which have taken place as a result of a clinical observation, which are then used to record a patient’s diagnosis or symptoms. We would expect things such as ‘Smoking Status’ to be captured within this group.
We have included a ‘hierarchy’ table in Appendix 2.
Multiple occurrences of this table are permitted when findings are recorded.
| Data item name | Additional notes |
|---|---|
| LOCAL PATIENT IDENTIFIER (EXTENDED) |
The Local Patient Identifier (Extended) is used to uniquely identify a participant within the Health Care Provider. It may be different from the participant’s casenote number and may be assigned automatically by the computer system. Within the LCS003 table this is a foreign key linkage data item. There must be an identical ‘Local Patient Identifier (Extended)’ present in the LCS001 group for this record to be accepted. |
| CODED FINDING TIMESTAMP | The date, time and time zone that the Clinical Finding was recorded by a CARE PROFESSIONAL. |
| CODED FINDING (SNOMED CT) |
The Coded Clinical Entry which is used to identify a participant’s finding, using SNOMED CT clinical terminology. The following SNOMED CT codes are of interest for LCSDS in this data item: Smoking Status Any valid code from the following refset: 999000891000000102 |Smoking simple reference set (foundation metadata concept)| i405746006 |Current non smoker but past smoking history unknown (finding)|
The list above is not exhaustive, and you may submit other relevant finding codes should you consider these to be appropriate. Note: SNOMED CT is subject to regular updates. The codes above were verified in February 2026. |
LCS004 Observation
An observation represents a question or assessment which can produce an answer or result, this could for example, be height and weight measurements.
This group is included to futureproof the ability to capture types of observations.
| Data item name | Additional notes |
|---|---|
| LOCAL PATIENT IDENTIFIER (EXTENDED) |
The Local Patient Identifier (Extended) is used to uniquely identify a participant within the Health Care Provider. It may be different from the participant’s casenote number and may be assigned automatically by the computer system. Within the LCS004 table this is a foreign key linkage data item. There must be an identical ‘Local Patient Identifier (Extended)’ present in the LCS001 group for this record to be accepted. |
| CODED OBSERVATION TIMESTAMP | The date, time and time zone that the Observable Entity was recorded by a Care Professional. |
| CODED OBSERVATION (SNOMED CT) | The CODED CLINICAL ENTRY which is used to identify a Patient Observation, using SNOMED CT Clinical Terminology. |
| OBSERVATION VALUE | The numeric value resulting from a clinical observation. If OBSERVATION VALUE is populated and the UCUM UNIT OF MEASUREMENT is blank, a warning will be reported. |
| UNIT OF MEASUREMENT (UCUM) | The unit of measurement used to measure the result of a clinical observation. This is the Unified Code for Units of Measure (UCUM) code system. |
Screening Request Information
LCS101 Screening eligibility
This is a pre lung health check confirmation to ensure that a person is eligible for screening. A person is described as ‘eligible’ if they are a former smoker between the ages of 55 and 74, they are then invited for a lung health check based upon their eligibility.
| Data item names | Additional notes |
|---|---|
| SCREENING ELIGIBILITY IDENTIFIER |
The Screening Eligibility Identifier is the unique identifier for the Screening Eligibility period. It would normally be automatically generated by the local system, although could be manually assigned. This is needed for each distinct eligibility assessment period. Most participants may only have 1 eligibility period at the same lung cancer screening provider. If a participant moves address, then they may then have a new eligibility period at a different lung cancer screening provider. A screening eligibility period could last for many years, from the point that a participant first becomes eligible for screening with a provider until the point the patient is discharged from a screening provider (For example they have aged out of the programme). This is a primary key in the LCS101 Screening Eligibility table and must be unique to this table within submission. It provides a link between records in the LCS102 Onward Referral and LCS103 Screening Offer tables. |
| LOCAL PATIENT IDENTIFIER (EXTENDED) |
The Local Patient Identifier (Extended) is used to uniquely identify a participant within the Health Care Provider. It may be different from the participant’s casenote number and may be assigned automatically by the computer system. Within the LCS101 table this is a foreign key linkage data item. There must be an identical ‘Local Patient Identifier (Extended)’ present in the LCS001 group for this record to be accepted. |
| ORGANISATION IDENTIFIER (CODE OF COMMISSIONER) | This is the Organisation Identifier of the organisation commissioning the provision of health care from the provider that initiated or commissioned the provision of care bound by the LCS101 Screening Eligibility table. It is this table which identifies the commissioner who has paid for those services. In LCSDS this should capture the ODS code of the Cancer Alliance (for example ‘N63’ for ‘West Yorkshire and Harrogate Cancer Alliance’, ‘N45’ for ‘West Midlands Cancer Alliance’ |
| SCREENING ELIGIBILITY CONFIRMATION DATE |
SCREENING ELIGIBILITY CONFIRMATION DATE is the date on which a screening provider confirmed that a participant is eligible for screening. A participant could be receiving care from a screening provider over several years, for example they could have several CT scans at two year intervals until they reach an age where they are no longer considered eligible. There may be local variations on how the Screening Eligibility Confirmation date is determined, but the expectation is that there would be some kind of acknowledgment or confirmation that takes place before the local screening team will start engaging with a new patient. Note: The information we are trying to capture here, would be the equivalent to an ‘open referral’, as seen within other national data sets. |
| LUNG CANCER SCREENING DISCHARGE REASON | DISCHARGE FROM LCS REASON is the reason for Discharge from the LCS service. |
| SERVICE DISCHARGE DATE | Service Discharge Date is the date a participant was discharged from a SERVICE. |
LCS102 Onward Referral
This table is to record and flow the details of the onward referral where the participant is being referred or transferred within the services under the current organisation or to another external service or organisation. This might include referral onto a lung cancer pathway or referral for an incidental finding.
These are onward referrals after incidental findings have been discovered as part of screening.
| Data item name | Additional notes |
|---|---|
| SCREENING ELIGIBILITY IDENTIFIER |
The unique identifier for a SCREENING ELIGIBILITY. Within the LCS102 table this is a foreign key linkage data item. There must be an identical ‘Screening Eligibility Identifier’ present in the LCS101 group for this record to be accepted |
| ONWARD REFERRAL DATE | The date the participant was referred to another service, which may be in the same or a different organisation |
| LUNG CANCER SCREENING ONWARD REFERRAL REASON | The reason why the participant was referred from one service to another service, which may be in the same or a different organisation. |
| ORGANISATION IDENTIFIER (RECEIVING ORGANISATION) | The ODS registered Organisational Identifier of the organisation where the patient was onward referred to. This should be populated if it is known or collected and can be left blank if not. |
LCS103 Screening Offer
| Data item name | Additional notes |
|---|---|
| SCREENING OFFER IDENTIFIER |
The unique identifier for a Screening Offer. This will be a unique identifier to identify the screening offer. This is a primary key in the LCS103 Screening Offer table and must be unique to this table within submission. It provides a link between records in the LCS104 Invitation Reminder, LCS105 Screening Outcome, LCS106 Signposting, LCS107 Coded Scored Assessment (Screening Offer) and LCS201 Care Contact tables. A new identifier is required each time a new screening offer is created. Each screening offer should be treated separately and have their own identifier, for example a screening offer identifier for the Lung Health Check offer and a separate screening offer identifier for the low dose CT scan. Note: Reminders are captured separately and should not result in a new identifier being created. |
| SCREENING ELIGIBILITY IDENTIFIER |
The unique identifier for the Screening Eligibility. Within the LCS103 table this is a foreign key linkage data item. There must be an identical ‘Screening Eligibility Identifier’ present in the LCS101 group for this record to be accepted. |
| SCREENING OFFER SENT DATE | The date the screening offer was sent to the participant. |
| SCREENING OFFER TYPE (LUNG CANCER SCREENING) |
The type of screening offer that was sent to the participant. This is used to indicate if this is for example, a screening offer for the Lung Health Check, or a screening offer for the low dose CT scan. |
| SCREENING APPOINTMENT SENT DATE |
The date the screening appointment was sent to the participant. This may be the same date as the ‘Screening Offer Sent Date’ depending on the local setup. Some lung cancer screening providers may contact a participant with an offer of a lung health check for this first time with a specific suggested appointment date. Other lung cancer screening providers may try to establish contact with a participant first before they offer an appointment on a specific date. |
| SCREENING OFFER COMMUNICATION MECHANISM | The communication mechanism used to make an offer to a participant to attend a screening appointment. |
LCS104 Invitation Reminder
| Data item name | Additional notes |
|---|---|
| SCREENING OFFER IDENTIFIER |
The unique identifier for a Screening Offer. Within the LCS104 table this is a foreign key linkage data item. There must be an identical ‘Screening Offer Identifier’ present in the LCS103 group for this record to be accepted |
| INVITATION REMINDER DATE |
The date that the participant was reminded about an Invitation Offer. These are reminders (or follow-ups) of the initial screening offer. |
| INVITATION REMINDER COMMUNICATION MECHANISM |
The communication mechanism used to remind a patient about an invitation offer. Refer to the ETOS for full details, examples include:
|
LCS105 Screening outcome
This table is to capture any outcomes of screening that are not communicated in the presence of a care professional (either in person or remotely). Where findings have been communicated in the presence of a care professional they should be captured in the LCS201 or LCS202 group as distinct care contacts, along with the associated findings of screening.
If the screening outcome is communicated vie email or letter, then there would not be a care contact with a care professional and you would therefore need to use this LCS105 group to capture the screening outcome. The user guidance that we are currently drafting will include a table of expected findings.
| Data item name | Additional notes |
|---|---|
| SCREENING OFFER IDENTIFIER |
The unique identifier for a screening offer. Within the LCS105 table this is a foreign key linkage data item. There must be an identical ‘Screening Offer Identifier’ present in the LCS103 group for this record to be accepted |
| SCREEENING OFFER IDENTIFIER | The date that the Screening Outcome took place. |
| CODED FINDING SNOMED CT |
Coded Finding (SNOMED CT) is the SNOMED CT concept ID which is used to identify a Finding. The following SNOMED CT codes are of interest for LCSDS in this data item: 13015001000119105 |Lung cancer screening declined (situation)| 1771781000000107 |Did not attend lung cancer screening (finding)| 413744002 |Cancer screening follow up (finding)| 183616001 |Follow-up arranged (finding)| 200521000000107 |Follow-up 3 months (finding)| 183627004 |Follow-up 1 year (finding)| 199581000000104 |Follow-up 2 years (finding)| 308171000000107 |Referral not made due to clinical decision (finding)| The list above is not exhaustive and you may submit other relevant finding codes should you consider these to be appropriate. Note: SNOMED CT is subject to regular updates. The codes above were verified in February 2026. |
LCS106 Signposting
This is expected to be any kind of advice in the form of a leaflet or pamphlet for example a referral to the local tobacco dependency service.
| Data item name | Additional notes |
|---|---|
| SCREENING OFFER IDENTIFIER |
The unique identifier for a Screening Offer. Within the LCS106 table this is a foreign key linkage data item. There must be an identical ‘Screening Offer Identifier’ present in the LCS103 group for this record to be accepted. |
| CODED PROCEDURE TIMESTAMP | The date, time and time zone that the Procedure was recorded by a care professional. |
| PROCEDURE (SNOMED CT) |
Procedure (SNOMED CT) is the SNOMED CT concept ID which is used to identify a Patient Procedure. The following SNOMED CT codes are of interest for LCSDS in this data item: 871661000000106 |Referral to smoking cessation service (procedure)| 1110791000000100 |Very Brief Advice on Smoking (procedure)| The list above is not exhaustive and you may submit other relevant procedure codes should you consider these to be appropriate. Note: SNOMED CT is subject to regular updates. The codes above were verified in February 2026. |
LCS107 Coded Scored Assessment (Screening Offer)
The LCS107 and LCS203 groups are intended to capture the scores from the lung health check.
The LCS107 group is intended for when the lung health check takes place without the involvement of a care professional. This isn’t usual practice at present time, however there is an expectation that this may become an option in the future. We are not expecting any data to flow in this group at the point of expected go-live in July 2026, except for those involved in the pilot. We will issue new communications and update this guidance should this position change in the future.
| Data item name | Additional notes |
|---|---|
| SCREENING OFFER IDENTIFIER |
The unique identifier for a Screening Offer. Within the LCS107 table this is a foreign key linkage data item. There must be an identical ‘Screening Offer Identifier’ present in the LCS103 group for this record to be accepted. There is nothing currently in scope for this group as yet, as such it can be used as and when required. |
| CODED ASSESSMENT TOOL TYPE (SNOMED CT) |
Coded Assessment Tool Type (SNOMED CT) is the SNOMED CT concept ID which is used to identify an Assessment Tool. This will be required for the two assessment tools outlined in the ‘SNOMED CT Codes’ section within this document. |
| PERSON SCORE | The outcome of an Assessment Tool completed by, or for a person. |
| ASSESSMENT TOOL COMPLETION DATE | The date the Assessment Tool was completed. |
Care contact and activities
LCS201 Care contact
A care contact can be defined as any type of contact or appointment between a person and a care professional. At a care contact, one or more care activities may take place, such as an assessment or a
minor procedure. Contacts may also take place face to face or via another means, such as online or by telephone. This table should reflect care contact instances from a participant perspective. If multiple care professionals are involved in a single care contact, this represents a single care contact record. There should not be multiple records created and or linked to each involved care professional.
This data table should include details of all care contacts for a patient within the reporting period. Care contacts that were cancelled by either the provider or the patient or where the patient Did Not Attend (DNA) should also be included.
For instances where a care contact is cancelled due to duplications or scheduling errors, this can be recorded within the Care Contact Cancellation Reason data item as being cancelled for a ‘non-clinical reason’.
Activities typically completed by administrative staff where the primary purpose of that activity is administrative in nature, for example arranging appointments, appointment reminders, notification of test results via any consultation mechanism should not flow.
There may be instances where administrative staff perform activity relevant to the person’s care for example, recording of outcome measures. In these cases that activity should flow.
| Data item name | Additional notes |
|---|---|
| CARE CONTACT IDENTIFIER |
The Care Contact Identifier is the unique identifier for a Care Contact. It would normally be automatically generated by the local system upon recording a new Care Contact, although could be manually assigned. This item is a primary key in the LCS201 Care Contact table and must be unique to this table. The Care Contact Identifier provides a links between records in the LCS201 Care Contact table and associated Care Activity carried out during a care contact. We would like to remind providers of the importance of ensuring that the Care Contact Identifier is truly a unique data item, both within the same submission file and across multiple submission files. The Care Contact Identifier is a primary key for its respectivetable and is based upon the Activity Identifier data attribute which is defined as “A unique number or set of characters that is applicable to only one Activity for a Patient within an Organisation”. This reiterates that these identifiers should be unique across submissions. These identifiers will typically be auto generated by the system in use, so will prevent duplicates when using the same system. Where multiple systems are used it is acceptable to include a prefix to the Care Contact Identifier, which relates to the system. The prefix enables each identifier to remain truly unique for all submissions from an organisation. Every distinct care contact (appointment) should have its own record and as such have its own Care Contact identifier. A participant may be invited to several different care contacts by the lung cancer screening provider, for example lung health check, low dose CT scan, screening outcome appointment to discuss the results of a scan. There are data items that are designed to capture Did Not Attend (DNA)s within the LCS201 Care Contact group. The Care Contact Identifier is primarily to identify the appointment itself. There is a separate group LCS202 Care Activity, with its own identifier that is used to capture the activity being carried out by the clinician. |
| SCREENING OFFER IDENTIFIER |
The unique identifier for a screening offer. Within the LCS201 table this is a foreign key linkage data item. There must be an identical ‘Screening Offer Identifier’ present in the LCS103 group for this record to be accepted. |
| CARE CONTACT DATE | The date on which a Care Contact took place. |
| CARE CONTACT TIME | The time (using a 24-hour clock) that is of relevance to an Activity. |
| CONSULTATION MECHANISM (LUNG CANCER SCREENING) |
The communication mechanism used to relay information between the CARE PROFESSIONAL and the PERSON who is the subject of the consultation, during a CARE CONTACT. A non-face to face consultation should directly support diagnosis and care planning and must replace a face-to-face Care Professional CARE CONTACT. A record of the consultation must be retained in the PATIENT's records. Contact with participants solely for the purpose of informing them of the outcome of Diagnostic Test results, with no other clinical interaction, are not classified as CARE CONTACTS. The LCS105 Screening Outcome group can be used for this purpose. |
| ACTIVITY LOCATION TYPE CODE (LUNG CANCER SCREENING) |
The type of LOCATION for an ACTIVITY. This can be the LOCATION where participants are seen, where SERVICES are provided or from which requests for SERVICES are sent. Some examples of this which are listed in the ETOS, could be as follows:
|
| ORGANISATION SITE IDENTIFIER (OF TREATMENT) |
ORGANISATION SITE IDENTIFIER (OF TREATMENT) is the ORGANISATION SITE IDENTIFIER of the ORGANISATION SITE where the participant was treated, so it should enable the treating ORGANISATION to be identified. ORGANISATION SITE IDENTIFIER (OF TREATMENT) identifies the ORGANISATION SITE within the ORGANISATION on which the participant was treated, since facilities may vary on different hospital sites. |
| ATTENDANCE STATUS | An indication of whether an APPOINTMENT for a CARE CONTACT took place. |
| EARLIEST CLINICALLY APPROPRIATE DATE | EARLIEST CLINICALLY APPROPRIATE DATE is the earliest date that it was clinically appropriate for an ACTIVITY to take place. |
| LATEST CLINICALLY APPROPRIATE DATE |
LATEST CLINICALLY APPROPRIATE DATE is the latest date that it was clinically appropriate for an ACTIVITY to take place. This date is the latest date that a participant should have their scan in line with the national Standard Protocol. |
| CARE CONTACT CANCELLATION DATE | A Care Contact Cancellation Date, is the date on which a CARE CONTACT was cancelled. |
| CARE CONTACT CANCELLATION REASON | The reason a CARE CONTACT was cancelled. |
LCS202 Care activity
This includes all the activity that takes place with a care professional while they are under the care of the LCSP service.
Essentially, this will be used to capture:
- the carrying out of the lung health check,
- the carrying out of the initial low dose CT scan,
- the carrying out of follow-up incident round and nodule surveillance low dose CT scans,
- the findings of the previous activities where they are communicated to the patient by a care professional as part of a care contact.
| Data item name | Additional notes |
|---|---|
| CARE ACTIVITY IDENTIFIER |
The Care Activity Identifier is used to uniquely identify the care activity. It would normally be automatically generated by the local system upon recording a new activity, although could be manually assigned. This item is a primary key in the LCS202 Care Activity table and must be unique to this table. The Care Activity Identifier provides a link between records in the LCS202 Care Activity table and associated Coded Scored Assessments carried out during a care contact. We would like to remind providers of the importance of ensuring that the Care Activity Identifier is truly a unique data item, both within the same submission file and across multiple submission files. The Care Activity Identifier is a primary key for its respective table and is based upon the Activity Identifier10 data attribute which is defined as “A unique number or set of characters that is applicable to only one Activity for a Patient within an Organisation”. This reiterates that these identifiers should be unique across submissions. These identifiers will typically be auto generated by the system in use, so will prevent duplicates when using the same system. Where multiple systems are used it is acceptable to include a prefix to the Care Activity Identifier, which relates to the system. The prefix enables each identifier to remain truly unique for all submissions from an organisation. In the LCSDS, it provides a link between records in the LCS202 Care Activity table and the associated Coded Scored Assessments carried out during a care contact - The LCS203 Coded Scored Assessment (Contact) table. |
| CARE CONTACT IDENTIFIER |
CARE CONTACT IDENTIFIER is the unique identifier for a CARE CONTACT. Within the LCS202 table this is a foreign key linkage data item. There must be an identical ‘Care Contact Identifier’ present in the LCS201 group for this record to be accepted. |
| CARE PROFESSIONAL LOCAL IDENTIFIER | A unique local CARE PROFESSIONAL IDENTIFIER within a Health Care Provider which may be assigned automatically by the computer system. |
| PROCEDURE (SNOMED CT) |
PROCEDURE (SNOMED CT) is the SNOMED CT concept ID which is used to identify a Patient Procedure. The following SNOMED CT codes are of interest for LCSDS in this data item: 183833005 |Referral for computed tomography (procedure)| 713548006 |Low dose computed tomography of thorax (procedure)| 71040008 |Computed tomography follow-up (procedure)| 1792011000000103 |Assessment using MyLungRisk questionnaire (procedure)| 1792041000000102 |Assessment using Prostate, Lung, Colorectal, and Ovarian modified 2012 6-year lung cancer risk calculator for smokers (procedure)| The list above is not exhaustive and you may submit other relevant procedure codes should you consider these to be appropriate. Note: SNOMED CT is subject to regular updates. The codes above were verified in February 2026. |
| CODED FINDING (SNOMED CT) |
CODED FINDING (SNOMED CT) is the SNOMED CT concept ID which is used to identify a Finding. The following SNOMED CT codes are of interest for LCSDS in this data item:
999000891000000102 |Smoking simple reference set (foundation metadata concept)| so. one of the following:
The list above is not exhaustive and you may submit other relevant finding codes should you consider these to be appropriate. Note: SNOMED CT is subject to regular updates. The codes above were verified in February 2026. |
| CODED OBSERVATION (SNOMED CT) |
CODED OBSERVATION (SNOMED CT) is the SNOMED CT concept ID which is used to identify an observable entity. |
| OBSERVATION VALUE | The value of a CLINICAL INVESTIGATION RESULT ITEM |
| UNIT OF MEASUREMENT (UCUM) | UCUM UNIT OF MEASUREMENT will be replaced with UNIT OF MEASUREMENT (UCUM), which is the most recent approved national information standards to describe the required definition. |
The following table shows the types of observation values and their respective units of measurement which are used for the Coded Observation (SNOMED CT) data item.
| Data item name | Additional notes | - |
|---|---|---|
| CODED OBSERVATION (SNOMED CT) | OBSERVATION VALUE | UNIT OF MEASUREMENT (UCUM) |
|
CODED OBSERVATION (SNOMED CT) is the SNOMED CT concept ID which is used to identify an Observable Entity. |
The value of a CLINICAL INVESTIGATION RESULT ITEM. |
UCUM UNIT OF MEASUREMENT will be replaced with UNIT OF MEASUREMENT (UCUM), which is the most recent approved national information standards to describe the required definition. |
| 60621009 |Body mass index (observable entity)| | for example 26.4 | not applicable |
| 105421008 |Educational achievement (observable entity)| |
“1” = Finished school at or before the age of fifteen “2” = GCSEs “3” = A-levels or equivalent “4” = Further education but not a degree “5” = Bachelor's degree or equivalent “6” = Further degree for example Masters, PhD or equivalent |
Not applicable |
| 230056004 |Cigarette consumption (observable entity)| | For example 30 | For example per day |
| 228487000 |Total time smoked (observable entity)| | For example 15 | For example years |
| 1221000175102 |Age at smoking cessation (observable entity)| | For example 30 | For example years |
| 228488005 |Age at starting smoking (observable entity)| | For example 15 | For example years |
The list above is not exhaustive and you may submit other relevant finding codes should you consider these to be appropriate.
Note: SNOMED CT is subject to regular updates. The codes above were verified in February 2026.
LCS203 Coded Scored Assessment (Contact)
As per LCS107, this is where you will capture the score from the lung health check.
| Data item name | Additional notes |
|---|---|
| CARE ACTIVITY IDENTIFIER | CARE ACTIVITY IDENTIFIER is the unique identifier for a CARE ACTIVITY. |
| CODED ASSESSMENT TOOL TYPE (SNOMED CT) |
CODED ASSESSMENT TOOL TYPE (SNOMED CT) is the SNOMED CT concept ID which is used to identify an ASSESSMENT TOOL. This can be used to capture the outcome of the following assessment tools: 1792001000000100 |MyLungRisk questionnaire score (observable entity)| 1792031000000106 |Prostate, Lung, Colorectal, and Ovarian modified 2012 6-year lung cancer risk calculator for smokers score (observable entity)| No other assessment tools are currently supported for capture in LCSDS. |
| PERSON SCORE |
The outcome of an ASSESSMENT TOOL completed by, or for a PERSON. This should be the percentage risk score that has been calculated using the assessment tool identified in the CODED ASSESSMENT TOOL TYPE (SNOMED CT). See earlier examples within this document. |
Other administrative tables
LCS901 Staff details
| Data item name | Additional notes |
|---|---|
| CARE PROFESSIONAL LOCAL IDENTIFIER |
A unique local CARE PROFESSIONAL IDENTIFIER within a Health Care provider which may be assigned automatically by the computer system. The Care Professional Local Identifier is used to uniquely identify the care professional within provider. This item is a primary key in the LCS901 Staff Details table and must be unique to this table, within submission. It would normally be automatically generated by the local system. Where a member of staff has multiple roles or works in more than one team concurrently, a separate record with a different Care Professional Local Identifier should be created to ensure correct staff characteristics such as Care Professional Staff Group and Main Speciality Code are attributed to each Care Contact and Activity. |
| CARE PROFESSIONAL STAFF GROUP (LUNG CANCER SCREENING) | The staff group of a CARE PROFESSIONAL working in a Lung Cancer Screening Service. |
| PROFESSIONAL REGISTRATION ISSUER CODE | A code which identifies the PROFESSIONAL REGISTRATION BODY. |
| PROFESSIONAL REGISTRATION ENTRY IDENTIFIER | The registration identifier allocated by an ORGANISATION. |
Last edited: 27 April 2026 11:17 am