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Learn about the terminology and message specification required to meet the DAPB 4101 Pathology and Laboratory Medicine Reporting Information Standard and the benefits its implementation will bring.
This directory signposts to standards for the recording and communicating of data across the NHS and adult social care services in England.
The latest 2019 congenital anomaly statistics report released by National Congenital Anomaly and Rare Disease Registration Service (NCARDRS)
The NICPR dataset forms the basis of the National Inherited Cancer Predisposition Register, which is a centralised list of all English residents with a proven genetic predisposition to cancer.
The NDRS Genomics data set specifies a structure for collecting genomics test outcome data in the NHS. It enables recording of granular results using internationally agreed scientific nomenclature.
The Cancer Site-Specific Audit data sets collect supplemental clinical data on cancer diagnosis and care.
The Rare Disease Data Set (RDDS) is the national standard for collecting rare disease data in the NHS.