The NHS England Fetal Anomaly Screening Programme (FASP) has been working collaboratively with the National Disease Registration Service (NDRS) for at least 10 years with the aim of continuous programme monitoring and improvement.
NDRS offers a unique service that provides very high-quality data curation, collection, analysis and reporting of detection rates for selected congenital conditions. This information is used to monitor and improve screening programmes at a local NHS maternity levels as well as both a regional and national level across England.
NDRS provides NHS FASP with the opportunity to report on programme performance sensitively and with a commitment to quality, transparency and safety. This facilitates effective service review and transparency for not only the NHS maternity but also for policy makers and the screened population
Introduction
As a multisource register, NDRS supported NHS FASP by collecting, curating and linking data across the full screening pathway, from antenatal screening tests through to postnatal diagnosis. This includes extracting data from local clinical systems, individual notifications, and national data sets.
NDRS used established methodologies to audit the performance of the combined screening test, quadruple screening test, and 20-week screening scan at a national level. Data is used to provide reliable and timely information about the effectiveness of screening services at local, regional and national level and contributes towards the monitoring, safety and continuous improvement of screening services.
Last edited: 12 May 2026 2:45 pm
