The new site is part of our digital transformation programme to consolidate existing websites including www.ncin.org and www.ndrs.nhs.uk, to create a single point of access for all publicly available online content.

If you have any further questions, please do not hesitate to contact the team at [email protected]

NDRS working in partnership with UCL on a grant funded by Sarcoma-UK and led by Dr Sandra Strauss recently published a paper looking at incidence and outcomes for breast sarcomas. This is the first population-based study to describe clinical and pathological characteristics of breast sarcoma in England and is the most comprehensive internationally. The paper describes how patients treated at specialist sarcoma centres are more likely to have a biopsy prior to surgery (83% versus 72%, p < 0.05) and less likely to require multiple operations (26% versus 41%, p < 0.05). As such, the authors recommend breast sarcomas are discussed at a sarcoma multi-disciplinary team meeting early in their pathway and surgery is considered at sarcoma specialist centre where possible

Our two Rapid Cancer Registration Data (RCRD) COVID-19 Incidence and Treatment dashboards continue to be updated with data for recent months. The latest monthly update included diagnoses up to May 2022 and treatment data until at least December 2021. The dashboards are available at: CancerData (publicly available) and CancerStats2 (requires a secure HSCN connection to access). In recent months, we have continued update the way we produce the RCRD, to improve the quality of the data so that it better matches the gold-standard cancer registration data; this has included updates to the stage data for stomach and oesophageal cancers. We have also recently added more surgery data, for cancers of the anus, gall bladder and small intestine and for endocrine tumours.

We will publish updated results in our Cancer Quality of Life Survey dashboard in the next few days. This update will, for the first time, include responses for all cancer types included in the Cancer Quality of Life Survey. Where possible, there will also be new filters by Integrated Care Board and Trust at diagnosis, and breakdowns by ethnic group, deprivation and stage at diagnosis.

One of the most common cancers in children, teenagers or young adults is Hodgkin lymphoma which affects the lymphatic system. Female patients who are given radiotherapy to their chests as part of their treatment for Hodgkin lymphoma are at increased risk of being diagnosed with breast cancer in later life. NDRS recently used its RadioTherapy Data Set (RTDS) to identify the latest cohort of former cancer patients in the Breast screening After Radiotherapy Dataset who will be called to start breast screening at an earlier age than the rest of the population.

NDRS has also recently published research in partnership with Health Data Insight and Kidney Cancer UK which NHS England’s National Cancer Programme has used as evidence to commission NICE to develop their first guidelines and quality standards that are specific to kidney cancer.

A publication describing NCARDRS work with the NHS Fetal Anomaly Screening Programme was published in BJOG: An International Journal of Obstetrics and Gynaecology.

The work, a retrospective audit of 12,694 diagnoses across a three-year national cohort. measured condition-specific detection rates for 14 physical conditions screened for by the NHS fetal anomaly screening programme (FASP) fetal anomaly (FA) ultrasound scan (20 week scan). The paper concludes that the performance of the FA scan is above expectations set in 2010 for most conditions. For the remaining conditions, the majority of fetuses and babies are detected prior to the FA scan.