GPES Data for Consented Research Data Provision Notice

The Health and Social Care Act 2012 (the 2012 Act) gives NHS England statutory powers, under section 259(1)(a), to require data from health or social care bodies, or organisations that provide publicly funded health or adult social care in England, where it has been directed to establish an information system by the Secretary of State for Health and Social Care.

Data is required, as specified by NHS England in this published Data Provision Notice (Notice) below, to enable NHS England to comply with the GPES Data for Consented Research Directions 2026 (Directions) and the accompanying Directions Requirement Specification (Requirements Specification) issued by the Secretary of State for Health and Social Care to NHS England. Therefore, organisations that are in scope of the Notice (as identified below) are legally required, under section 259(5) of the 2012 Act, to comply with the requirement to provide the data in the form, manner and in accordance with the timing requirements specified below.

All patients currently registered with a General Practice or with a date of death on or after 1 November 2019 whose record contains certain coded information. For each patient, NHS England requires the following personal data:

• NHS Number 
• postcode 
• address 
• surname and forename 
• sex 
• ethnicity 
• date of birth 
• date of death 

Data will be collected for the associated SNOMED code(s) and date(s) for GP record entries including: 

• diagnoses and findings 
• medications and other prescribed items 
• investigations, tests and results 
• treatments and outcomes 
• vaccinations and immunisations

Type 1 objections are applied to data prior to collection by NHS England and those records are excluded from the Data Specification. Therefore, the data for those participants who have registered a Type 1 objection with their GP will not be collected and will not be available to share with an approved research study, even if explicit consent has been provided by or on behalf of those participants, for so long as a Type 1 objection is in place.

Collection of data is via a monthly extract. This means that all activity which happens in the preceding month is collected every month. The collection is anticipated to continue until the expiry of the Directions.